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The Usher Syndrome Family Center
Coordinated Care. Compassionate Support. A Place to Turn.
Dedicated Center for Families Living with Usher Syndrome
Every family's journey with Usher syndrome is unique, but no family should have to navigate it alone.
The Usher Syndrome Family Center (USFC) provides coordinated care, trusted guidance, and compassionate support for children, teens, adults, and families living with Usher Syndrome.
With guidance and the right training and technology, individuals with Usher Syndrome are pursuing their dreams, exploring new opportunities and living active and meaningful lives.
What is Usher Syndrome?
Usher syndrome is a rare genetic condition that affects hearing and vision and may also impact balance. Individuals with Usher syndrome are born with or develop hearing loss and experience progressive vision loss over time.
While there is currently no cure, early identification, coordinated intervention, education, individualized strategies, and ongoing support can make a meaningful difference in communication, independence, and quality of life.
“Working with the appropriate professionals and actively learning techniques to face obstacles with confidence will last a lifetime.” — Ethan and Gavin
Coordinated Care for Families
Families connected to the USFC have access to a team of professionals who work together to support evolving needs over time. The team may include:
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Family navigator
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Audiologists
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Speech-language pathologists
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Teachers of the Deaf
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Deafblind specialists
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Assistive technology specialists
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Mental health therapists
At CHC, hearing, communication, education, emotional wellness, and vision-related supports are intentionally connected — helping families avoid the stress of coordinating services on their own.
Building Confidence and Independence
The USFC supports children and families in building communication, self-advocacy, confidence, and independence from an early age through every stage of development.
Our approach focuses on:
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Early support and intervention
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Coordinated care
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Emotional wellness
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Self-advocacy skills
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Preparing for the future
We're Here for You
Families living with Usher Syndrome are encouraged to contact the Usher Syndrome Family Center for expert guidance, reliable information, community connections and coordinated support.
Dana Selznick, M.A., M. Ed.
CHC's Usher Syndrome Family Center
917-305-7855
The Usher Syndrome Family Center at the Center for Hearing and Communication is made possible through a generous grant from The Fairfield Fund.