Lines of Communication

Otoferlin-related deafness is caused by a problem in a specific gene, and it can severely affect a child’s hearing. But with this new gene therapy treatment, there’s now a chance to fix the genetic issue and help these children hear more clearly. For parents who aren’t sure what’s causing their child’s hearing loss, we encourage taking action to meet with a geneticist or genetics counselor to get a clearer picture of whether the hearing loss could be due to a genetic mutation